by Admin | Feb 11, 2021 | #kc4k
Our very own Susan Hagemeyer, #TAF board member, was featured in Toledo Parent! “Words Matter” discusses how the words we use matter when discussing disabilities and rare diseases. Here is an excerpt: “Susan Hagemeyer, an active board member of the Avalon Foundation... by Admin | Mar 30, 2020 | Uncategorized
Avalon Budd’s personal struggle with HPP treatments provided impetus to found The Avalon Foundation of Toledo. Avalon (Avie) Budd has a rare genetic disease, Hypophosphatasia (HPP), that is characterized by the abnormal development of bones and teeth. Avie, who... by Admin | May 22, 2018 | Uncategorized
We were honored to be invited by the 2018 Pediatric Endocrinology Nursing Society National Conference in May. Our President, Deborah Ayres, spoke on a panel about children and painful medical treatments. We also had the privilege of Board member, Jamie Heldt,...
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