OCTOBER 9 IS LADIES’ NIGHT! Click here to find out about sponsorship, tickets, and more!
The Avalon Foundation is BY kids – FOR kids.
We believe EVERY child deserves the opportunity to succeed;
and we help kids fighting rare diseases do just that
through youth leadership and peer support!
Why We’re Here
Our Mission
The Avalon Foundation is committed to
youth-centered leadership through
serving communities impacted by RARE disease.
Youth Community
#KC4K Youth Leadership Program
Designed to give kids at an early age a place to volunteer and learn to give back. Our #KC4K mission is to teach our youth the importance of volunteering, having responsibility, and being compassionate at an early age, all while becoming a leader.
Rare Disease Community
Patient & Family Support Program
Our customized care packages called #PainBoxes serve as an incentive program for children starting treatment for hypophosphatasia (HPP). We also provide support and resources for patients and their families in the rare disease community.
DID YOU KNOW?
Rare Diseases
%
Of patients diagnosed with a rare disease are children
Number of Americans with a rare disease
%
Of TAF Patients maintain treatment as prescribed by their physician
Keep up with TAF!
